The Drama never ends!!!

First let me start with our visit last night. After the doctor told us that he would be on CPAP for 6 hours and then off, we thought we would go back in the evening and hold him without all of the stuff on him. When we arrived we found that one of the nurses that has had him the most that we liked had him again. It is a great comfort to see the same faces because you know they know your child and what they act like in times of distress. We sat down to hold him and she swaddled him up and handed him to Miranda. She got comfortable in the chair and then the problems began.

Brayden began to Desat which can happen sometimes but he was having a hard time recovering. Usually he can recover on his own but he was struggling to breathe last night. At first we thought maybe he was bundled too tight and tried to unwrap him. It still didn't help. After about 15 minutes of trying to get his O2 levels back up he started to change colors so we had to put him back in his bed. Even after being in his bed, he still was unable to recover by himself. While the nurse was helping us try and get his sats back up she was talking to us and let slip that she had been sick and had run a fever the day before. Imagine the horror that went through our heads when the woman charged with taking care of our immune compromised, respiratory distressed child is sick. Not only was she sick, but she said she didn't go to the doctor to see what she had. Who the HELL thought that was a good idea????

We asked to speak to the doctor on call because Brayden was still not recovering from his episode and his Sat's were getting lower. When the doctor arrived Miranda tried to explain to her that our fear was that he had popped another pnuemo. She was rather cold and crass and said that she didn't see anything wrong with him. It wasn't until he desatted to the 60's in front of her that she decided to do something. She put him back on the CPAP and said he needed to stay on it through the night and that Dr. Nesslein would assess him in the morning. We sat by his bed side till 10:30 waiting to see if he was going to recover. When we felt he was stable we finally decided to leave and go home to Payton who was anxiously awaiting us. We called back several time throughout the night to check on him.